BLACKSWAN, une Fondation Suisse pour la recherche sur les maladies orphelines
Lorsque Olivier Rigot, Président du Lions-Club de Genève et ex-membre du Booster Club, m’a parlé de son soutien à la fondation BLACKSWAN, j’ai de suite aimé l’idée de communiquer sur cette initiative. J’ai rencontré son fondateur, le docteur Olivier Menzel qui a participé à une soirée du Booster Club Lausanne.
Voici quelle est son histoire, décrite sur le site www.blackswanfoundation.ch
The BLACKSWAN Foundation was founded by Dr Olivier Menzel and born of the efforts of the Division of Pediatric Surgery of the University Hospitals Geneva.Dr Menzel has based his career on advancing our understanding of rare and orphan diseases. However, he promptly realized that there was a dire lack of support from private and public funding sources in Switzerland. This is in contrast to the fact that there are 8000 rare diseases and that as many as 5 new conditions are reported weekly in the medical literature. It is estimated that as many as 500’000 Swiss residents suffer from a rare or orphan disease.
Lors d’une soirée Booster Club au Casino du Lac à Genève, Olivier Rigot a pu communiquer sur l’évènement organisé par le Lions-Club de Genève courant avril 2016.